SuperTruth Will Never Profit From Children. Sean's Friends Is How We Made That a Legal Fact.
Photo by Hill Family on Unsplash
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SuperTruth Will Never Profit From Children. Sean's Friends Is How We Made That a Legal Fact.

By Jason Alan Snyder·May 1, 2026

Most companies build a philanthropic arm after the money is in the door. We built Sean's Friends on Day One, before the company was profitable, because the order matters. Giving is the tenet. Profit follows the tenet.

Most healthcare companies build a philanthropic arm after the money is in the door. They wait for the Series B, the profitable quarter, the right moment when giving feels affordable. We did not wait.

Sean's Friends is a founding tenet of SuperTruth — not a philanthropy program added after success, not a governance box checked after the profitable quarter. The intent was set on day one. It is not a marketing decision. It is a statement about what kind of company we intend to be.

Bobby's reason

Bobby Hill, SuperTruth's co-founder, was in the hospital room when his son Sean was diagnosed with a pulmonary condition. The head of research told Bobby and his wife Casey that most rare disease research dollars come from parents. The same parents who just received a diagnosis that changed everything.

"I was sitting in that hospital room thinking two things at the same time," Bobby said. "First, I would do anything in the world for my son. Second, why is the system designed so that the families in the hardest moments are also the ones being asked to fund the cure? That is a design failure. We designed something different."

The fund is the public form of a private commitment made in that room. The first grant went to Children's Hospital of Philadelphia, specifically the NICU and pulmonary research teams that cared for Sean.

The founding tenet

SuperTruth verifies the quality, consent, and provenance of healthcare data. The company will generate revenue from health data work. Some of that revenue will come from pediatric partnerships. All of it flows to Sean's Friends.

That is not a pledge. It is a legal structure. The dollars cannot come back.

"Every business makes choices about what it will and will not do with its success," Bobby said. "We made that choice before the success existed. The fund is not a thank-you note we plan to write later. It is the founding logic."

Doing well by doing good

JAS and Bobby started SuperTruth on a shared belief: that the healthcare industry's data problems have a body count. Bad data trains wrong models. Wrong models inform wrong decisions. The mission is to fix that.

Sean's Friends is the commitment that the people building that infrastructure make to the children who will live with the consequences.

"I think about the conversation we are going to have with our children about why we built this company," said Jason Alan Snyder, SuperTruth's co-founder. "I want to be able to say that on the first day, before anyone had paid us a dollar, we already knew who we were building it for. Sean's Friends is the answer to that question."

The "doing well by doing good" model is not new. What is new is a structural commitment baked into the founding documents. Most companies talk about purpose. This is purpose written into the operating architecture of the company as a tenet, not an afterthought.

"The businesses that last are the ones where the mission and the money are not in conflict," JAS said. "When you build the trust infrastructure for health data, the natural partners are the hospitals, the researchers, and the families who need that data to be right. Sean's Friends is the formal expression of that alignment. We are not doing this because it is good PR. We are doing it because it is the correct design for a company in this space."

The rare disease paradox

There is a structural problem in rare disease research that almost nobody talks about. The system asks the sickest families to also fund the cure.

Sean's Friends exists to close that gap. The fund has three purposes:

For families. If you just received a diagnosis and need financial support to bring your child home, buy equipment, or get a second opinion, this fund is for you.

For researchers. If you are a children's hospital or research team doing the work and losing funding, this fund is for you.

For donors. If you want to fund research at the hospital that helped your child, this is the vehicle.

How to give

Sean's Friends is a donor advised fund and accepts cash, appreciated securities, cryptocurrency, and DAF-to-DAF transfers. Contributions are immediately tax-deductible.

Fund ID: CGF 1424285. Tax ID: 11-0303001 .

Learn more and contribute at seansfriends.com.

Further reading:

  • Sean's Friends: Official announcement
  • Why We Built SuperTruth
  • Jason Alan Snyder

    Jason Alan Snyder

    Co-founder of SuperTruth and Artists & Robots, and an inventor on the Data Trust Index patents. Twenty-plus years building technology inside Interpublic Group. He writes here nearly every day on data trust, provenance, and what AI should be allowed to act on, and publishes essays on his Substack.

    About SuperTruth · LinkedIn · Substack · jasonalansnyder.com

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