Why We Built SuperTruth: A Promise Made in a Hospital Room

There are two stories behind SuperTruth. They happened to two different people, in two different hospitals, years apart. Neither of us knew the other yet. But they are the same story.

Bobby's story

Bobby Hill's son was born on Labor Day weekend. Six weeks in the NICU. Breathing problems that were not resolving. Months of uncertainty. Then a nurse — one nurse, who decided to push harder than anyone else had — advocated for running additional tests. That decision led to a diagnosis: pulmonary interstitial glycogenosis, a rare lung disease so uncommon that even physicians at one of the best children's hospitals in the world were uncertain what they were looking at.

In the diagnosis meeting, the researcher who had just moved to CHOP to build a national registry for this disease told Bobby something that he has repeated many times since. She said: the reason I cannot give you a course of action is not because the data does not exist. It is because the data is buried. In biopsies. In notes. In records that no one has found a way to surface, connect, or trust.

She pointed at Epic on the screen. She pulled up Instagram on her phone. She said: this system can alert me when a friend I barely know likes an image. Yet it cannot alert me when a child across the country already has three or four indicators I need to know about.

Bobby's son is doing better. He still has the disease. But he is here because one nurse pushed, and because a researcher happened to be in the right place at the right time. Most families are not that fortunate.

My story

My father had non-Hodgkin's lymphoma. They missed it on a PET scan.

By the time they caught it, he was gone in a matter of weeks.

Before he died, I made him a promise. I told him I would use what I know to help fix this system for other people. Because what killed my father was not a lack of medicine. It was a data problem. The information was there. It was missed.

I am an inventor and a technologist. I have spent thirty years building data systems — at AOL, at Yahoo, as the AI strategy lead for one of the largest data companies in the world. I hold multiple patents. I have built systems that interrogate datasets to find what is real and surface what is being missed. That is the work. That has always been the work. And sitting in that moment, I understood that I had spent my entire career building the exact tool that could have saved my father's life, and I had not yet pointed it at the problem that mattered most.

That promise is why I am here. That is what SuperTruth is built on. Not just the technology. The conviction that nobody should lose someone because the data failed.

The same problem

Bobby and I came to the same conclusion from different directions. He watched his son's diagnosis nearly disappear into a system that had no mechanism to surface it. I watched my father's cancer get missed in a system that had the data and lost it anyway.

The problem in both cases was not the absence of information. It was the absence of a trust layer — the infrastructure that would take that information, score it for accuracy and recency, connect it across systems, and make it impossible to miss.

That is the Data Trust Index. Eight dimensions. A score that travels with every record permanently. Provenance that traces where data came from. Recency that tracks how current it is. Concordance that checks whether findings corroborate across independent sources.

A PET scan result that contradicts a prior indicator should surface as a signal, not disappear into a record that no one pulls before the next appointment. A rare lung disease with precursor indicators should trigger an alert, not require a single nurse to advocate loudly enough to be heard.

What we are building

SuperTruth is a healthcare data infrastructure company. We build the trust layer between data and decisions.

But the reason we build it is simpler than that.

We build it because data failure is not abstract. It happens to real people, in real hospital rooms, with real consequences. We know this personally. And we made promises we intend to keep.

If your organization is dealing with the same infrastructure problem — data that exists but cannot be trusted, records that exist but cannot be connected, research that exists but cannot reach the patients who need it — reach Louis Simeonidis at louis@supertruth.ai or (215) 918-4140.